NAI were delighted to address representatives of patient organisations from across Europe at the EFNA (European Federation of Neurological Associations) Event on November 29th in Dun Laoghaire Dublin.
Entitled "Stronger Connected" the workshop focused on approaches across Europe to put in place policy frameworks and investment around neurological services.
The NAI presentation by Mags Rogers, our Executive Director, marked the 20 year anniversary of the Alliance this year with a reflection on the successes and challenges associated with campaigning as an umbrella organisation.
A further insight into the experience here in Ireland was also shared by Dr Paul Caroll, Clinical Lead for Rehabilitation Medicine, who spoke about the work that is being done to implement the National Neurorehabilitation Strategy. NAI continues to play a key role in advocating for investment and supporting implementation of the Strategy.
Looking to other countries, presentations from the Neurological Alliance in the UK and on national brain plans in Finland and Switzerland, highlighted how awareness and support is being for initiatives such as the World Health Organisation IGAP (Intersectoral Global Action Plan) for Neurological Disorders and Epilepsy. Donna Walsh, CEO of the International Bureau for Epilepsy, highlighted the role of NAI members Epilepsy Ireland in securing recognition and support for the IGAP here in Ireland. The WHO framework will form a key support for the NAI advocacy platform in 2024 as we look towards the next general election.
The launch of the Rare Neurology Charter provides a vital tool to inform and support advocacy for rare neurological conditions and NAI will be incorporating the charter into its advocacy programme going forward.
Our warm thanks to EFNA for the opportunity to work with them in organising this event and we look forward to the conference report.