The Neurological Alliance of Ireland has published the fourth in their series of survey reports on the lived experience of people with neurological conditions in Ireland. NAI has carried out these nationwide surveys over a period of years, beginning in 2011.
Data collection to inform the 2020 survey was carried out in November and December 2019, before the onset of the COVID19 pandemic. The report examines access to neurological care services and a range of other supports among people with neurological conditions and family carers. For the first time in these surveys there is a specific focus on issues facing parents of a child with a neurological condition.
The report shows a worrying trend in relation to accessing key services when this is compared to previous surveys. Since 2011, the percentage of respondents reporting they could not access a service has doubled in relation to neurology and physiotherapy services.
A range of other areas examined in the survey include out of pocket expenditure, employment, access to medicines and home care.
The full report is available to download at Living With A Neurological Condition in Ireland